Sunday, December 29, 2013

My Philosophy On Life

This sums up my philosophy of life. I couldn't say it any other way.


Wednesday, December 25, 2013

Merry Christmas

Seasons Greetings

Just hanging out having a relaxing day thinking of all the good presents I got from my family and friends.Hope everybody is having a great day.

Sunday, December 22, 2013

SEASONS GREETINGS

Today as I write this I'm thinking to myself where do I begin. I apologize for being so lengthy.

To those who are in the South with the tornadoes I pray everybody is safe, and those who are having severe winter weather please be safe also. Here in Virginia we are having beautiful 76° weather. We will probably get slammed with winter weather when we are not expecting it.

It is hard to believe that it is almost Christmas. It is a happy time and also a sad time for me. Seven years ago today was the last day I spent with my significant other Charlie. Today we would have been our anniversary, we celebrated 26 beautiful years together. He passed away shortly after 1 AM on December 23. I was sad to let him go but I knew he was going to a better place and that someday I would get to see him again. 

He was in a wheelchair also. We moved from Pennsylvania and built an accessible house together out in the country. We spent many days in our yard watching the wildlife. There was many a day when we would get up in the morning and have deer in our yard along with the neighbors cows or bull.  Charlie was always crazy about having a perfect green lawn it was hard seeing that when the animals or birds would eat the grass or seeds. We planted many trees, flowers, and vegetable boxes. Charlie had a special designed tractor. It had the mower attachment upfront and it had a bed almost like the bed of a pickup truck that the tailgate lowered to the ground. He rode his wheel chair up onto it and he drove with hand controls. He was able to mow grass, plow the ground, spreads fertilizer, and in the winter he plowed the snow. I got to drive it one time, notice I said one time. Evidently I didn't drive his baby very well.

We had a handicap accessible van, in fact over the 26 years together we were on our 3rd van. It had no front seats because we rode from our wheelchairs. It was funny taking it to the garage and the garage man couldn't find the front seat. We always carried a bucket in the back, we told him here sit on this. We traveled a lot when we were able to. We made many trips back and forth to Pennsylvania in the summer every year. One year we drove to Texas, we would drive 400 miles and stay at a hotel and start out early again the next day. Sometimes it would take us 30 min. or more just to pack up all of our medical equipment with most of it being my stuff. I was always accused of being a heavy load, LOL. Three years later we drove again to Texas but on our way home we drove down to Sun City Center below Tampa Florida we were gone for almost 3 weeks. We traveled all over Virginia with the Knights of Columbus. We loved fishing, near where we lived there was a wildlife area where there was a ramp out to the water. He always fished for the big fish I always ended up feeding the little fish. We went on a fishing trip one year. I got a trophy for the biggest fish while Charlie got the trophy for the smallest one, LOL. We loved fishing, bowling, and dancing. He was a Peer Counselor for the newly spinal cord injured veterans at the VA hospital.

In 1994 he had Non-Hodgkin's lymphoma which he had to have his kidney and spleen removed. He received 6 cycles of chemotherapy, he would go on Friday and got 4 medications by IV and four different ones the next Friday and he would be off for one week. Unfortunately his second round of chemo did not go so well every time. After every second Friday I thought I would lose him, he would get so sick. We spent 11 months at the VA hospital, yes I visited him every day out of the 11 months except for five days. One of his medications they didn't know what long time side effects would be especially to the elderly. Several years later he slowly began to lose memory. He was able to take care of all my needs, and 2002 I had to start taking care of him. I had home health nurses and CNA's helping us almost 24 hours a day. He eventually ended up with short memory loss and confusion. I always teased him he could tell me things from when he was a kid but not what I told him 5 min. ago. Sometimes I told him had selective memory LOL. In 2006 I had to make the most saddest decision I have ever made in my life. I knew he needed more care than what I was able to arrange for him. I put him into the nursing home, I moved in one month later. I couldn't stay at the house that we made into a home with our love for each other. Three months later he was gone. He waited until after our anniversary day. We buried him two days after Christmas.


Christmas is still and will always be a precious time of the year for me. I found my true before Christmas and I left the Angels have him before Christmas. Christmas is the day we celebrate the birth of Christ, I celebrate Charlie's new life in heaven. I wish everybody a very blessed holiday. I love you all. Please always remember to hug your loved ones, life is a precious gift and so is a hug.

Sunday, December 8, 2013

PLEASE VOTE FOR ME

Good afternoon

Hope everybody is fine on this ugly dreary Sunday. Our weather can't decide whether it is going to give us ice, rain, or snow. I hope it is none of them. But it sure looks nasty outside.

They have lifted my full isolation which means that when you come in the room you don't have to put on the gown, gloves, and a mask. As far as me leaving the room that is still iffy. My immune system has been weakened by the medication, I don't want to get out there. You never know what people have to share LOL.


I have a favor to ask everybody. I need you to go and vote for me. Please vote for the MUSCULAR DYSTROPHY ASSOCIATION


http://www.10millioncharitymiles.com/charity/20


You do not have to register to vote just go and vote.This will continue until December 31, 2013.

You still have many times to vote.

The Muscular Dystrophy Association has helped me immensely over the years. They have provided me with my braces, wheelchairs, cushions, and any other medical equipment that I need. They have sent me to summer camp when I was younger. I had the best time in my life at summer camp. I got to do" normal" things if there ever is such a thing. They do research for my disease Spinal Muscular Atrophy(SMA).

Vote daily to help United® spread 10 million award miles to participating nonprofit partners. Every nonprofit partner will receive at least 25,000 miles, which can be used toward travel, transport and other needs. And the more votes your favorite nonprofit partner gets each day, the more miles it will receive at the end of the campaign. It’s our way of coming together, extending a shared gratitude to the ones who give so much to those in need.


Thank you so much for taking your time to help.  I hope everybody has a blessed week, and be safe. <3



Monday, November 25, 2013

HAPPY THANKSGIVING

I just made this earlier today. I hope everbody has a nice Thanksgiving. I'll still be in my isolation room.



Saturday, November 9, 2013

UGH ISOLATION ROUND 2 :'(

Just a little update. I got out of isolation and was doing great. I went to several drs this week and last. Got some good news and bad. I'll give you those later. Last evening I started not feeling good. Today I had fever 101 and can't stop going to the bathroom. It looks like either the c-diff has returned or never went away. If test come back positive I go back into isolation for at least another 2 weeks or more. :'( this is getting old. My faith and my friends will get me through this. I will update in a few days. Hope everybody having a great day.